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Thread: Sockgnome's Health Update - with GIFs!

  1. #1
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    Sockgnome's Health Update - with GIFs!

    Hello to all of my wonderful forum-goers, DPFers, fellow pinthusiasts!
    In order to make this post more cheerful, I have (finally) figured out how to include GIFs!



    Many of you know that earlier this year, my husband and I were planning on going on a 2 year long trip around the world! Travelling to Europe, visiting Australia, and checking out Asia were all on the schedule. It was a trip we had been planning for four years, ever since we got married.



    We moved from Southern Oregon down to California in the first week of February, planning on spending that month with my family and then leaving in March. Unfortunately, once we got here it became apparent that I was having some serious health problems. I have extreme fatigue that keeps getting worse, chronic body pain, and inflammation that none of the doctors can figure out the cause of. The trip got postponed until we could figure out what was going on-I figured it would be 2-3 months, tops.



    Yesterday marked 6 months of us still being in California (thank you to my long-suffering parents for putting us up!), and sometimes it feels like we're no closer to an answer. I go to several doctors appointments a week and get bloodwork done regularly, and we've been able to rule out a lot. It's starting to look like some of my symptoms might be due to fibromyalgia, but that doesn't explain everything. It's been really frustrating to not have an answer, and not know how much longer we're going to have to postpone our trip.



    The most difficult part for me recently has been that my 30th birthday is coming up in September, and I was really looking forward to being in France for it! And my husband and my 5th wedding anniversary is in October, which we thought we'd be spending in Germany. Having to admit that we will still be here for both of these milestone events has taken me a long time to accept.



    And on top of everything else, my husband came home Monday from a 4.5 day stay in the Emergency Room/ICU. That was crazy! I feel like I've been living at the hospital. He's home now, and just fine, if a little tired. Thankfully we have insurance, but I'm still not looking forward to getting the bill!

    TO SUMMARIZE, I wanted to keep those of you updated who already knew some of what was going on, and those of you who have very kindly asked about my progress. THANK YOU to everyone who gave me hugs and wanted updates at Docfish's trading party a few months ago! Knowing that there are people here who care about my well-being and wonder how I'm doing means so much to me! If you guys could just keep my husband and I in your thoughts and prayers, it would mean the world to me. I know we're going to get through this, and I know we'll make it on our trip eventually. I just never thought it would take this long!


  2. #2
    DisneyPinForum Veteran Snoffsan's Avatar
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    Im so sorry to hear about your health not being ok. I totally know what you are going through as I live with a chronic illness that ruins my plans and life more often than I want to admit.

    I dont know all your symtoms but maybe you should read about Ehlers-Danlos syndrom. That is what I have. It took so many doctors and so many years to get this diagnosis and they wrongfully gave me Fibrymyalgia diagnosis for a long time. But as with you that did just not explain all my strange symtoms. it was first when a doctor connected all my somtoms that no one thought had anything to do with eachother that they found Ehlers-Danlos.

    Unfortunally there is no cure or even any real treatment but sometimes it just helps a lot to get a diagnosis so you can start planning and learning to live with it.

    I still have a lot of ups and downs. Im not able to work full time anymore and Im contantly on morphine to just get through the day. But at least I finally know what is wrong with me and it helps a lot.

    Like I just learned that there is one, yes ONE, doctor in Sweden that specialises on this disorder and yesterday my doctor wrote a referal to that doctor. I have no idea if they will accept and even if they do, how long it will take until I can get there but at least I have something that feels like a bright thing in my future.

    I really hope they find what is wrong with you and that there is something they can treat or even cure so that you can go on your dream trip. And when, yes I will say WHEN and not IF, you do you really have to go to Sweden too, and come see me! I can show you around in Stockholm, its such a beautiful city with lots of interesting history.

    LOVE and hugs!

    Pinpics Snoffsan

  3. #3
    Judge of the Dark Court starry_solo's Avatar
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    Hugs!

    I hope they figure out what's going on.
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  4. #4
    B for Belle or B for bacon? watzshakinbacon's Avatar
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    I hope you can go on that trip sooner than later! Happy early birthday and anniversary :]
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  5. #5
    Squirrel! caw caw rawr's Avatar
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    Sending thoughts, prayers and pixie dust your way. Hopefully an answer is on its way too.

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  6. #6
    Your Friend Who Likes To Play timeerkat's Avatar
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    I'm so sorry to hear what you're going through. All my best wishes for the doctors to figure it out soon!

    Yes, have a wonderful trip WHEN you are finally able to take it!

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  7. #7
    A Villainous Villain! AidanShepard's Avatar
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    Ahh I hope everything works out. Not knowing can be awful, but I'm absolutely positive it'll pan out just fine!!!

    A trip around the world like that sounds amazing, truly!!! I wanna visit Ireland one day.

    Lots of hugs for you!!!


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  8. #8
    DisneyPinForum Veteran mickeymousje's Avatar
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    I'm so sorry that you're going through all of this I know how it is to live with a chronical illness and I still can't except that some things I can't do or take time. It took a long time before the doctors found out what I have. Hope they come with an answer soon! Sending lots of hugs and pixiedust your way

  9. #9
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    Thank you for the update. Sorry you're still not feeling well and that you're trip is on hold during 2 important celebrations. Hugs to you and your family.

  10. #10
    Mrs. Nesbitt SiuJerkJai's Avatar
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    Lots and lots of big, soft, furry hugs for you.



  11. #11
    DPF's Keyblade Wielder Purplemandms's Avatar
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    Wishing you the absolute best and a future of answers. Having recently gone through an experience of an unknown medical diagnosis, I can at least somewhat appreciate the struggle and the immense frustration. Keeping you in my thoughts and intentions, and sending lots of pixie dust and hugs your way!


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  12. #12
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    You guys. Seriously. You're amazing. Thank you from the bottom of my heart for all of the well wishes and long distance hugs!

  13. #13
    DisneyPinForum Veteran CCofRR13's Avatar
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    I am so sorry you are going through this. Sending positive thoughts, prayers and pixie dust that you start finding some answers and can move forward with your amazing plans to see the world. ((HUGS))

  14. #14
    DisneyPinForum Senior Member NutMeg's Avatar
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    I'm so sorry that you're suffering. I have chronic pain in my leg and can't get a definite diagnosis, either (it wasn't caused by an injury or anything.) I know how frustrating it is and how it can have such a debilitating impact on your life. I know you don't know me, but please PM me anytime if you need someone to talk to. Even if you just need to rant about having a crappy day, I'm happy to listen! Sometimes it helps just to vent. I'll keep you and your husband in my thoughts. It's awful that you had to postpone such an incredible adventure and miss out on the overseas milestones you were looking forward to. But I'm sure that when your trip eventually does happen, there will be plenty of other magical milestones in store for you - they just won't be the ones you expected. Sometimes good things fall apart so that better things can come together!


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  15. #15
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    So sorry you are going through this, if you haven't already you may want to double check for Lupus as it can come up around your age and symptoms can overlap with fibro. Just know you aren't alone, many people are struggling with immune diseases and all the trials that go along with trying to get diagnosed. Hang in there and never be afraid to advocate for yourself with the docs you know more about what your experiencing than they do and they should listen and I hope you feel better soon. :-)
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