As some of you know Im suffering from a connective tissue disorder called Ehlers-Danlos syndrom. Some day s its a hell. Today is one of those days and I need some positive reinforcments. Last year I ran the 10k at Disney marathon weekend. My meds was working really well back then and I felt like I could conquere the world and signed upp for the Disney princess fairytale challange 2018. That means that in just over a month from now I will be running a 10k and the day after a half marathon. I never ran longer than a 10k before and Im starting to get scared. Right now my meds is not working at all and because of that I was adviced to stop taking them. I was on a high dose of morphine every day to get through the pain. Right now Im trying to live without any painkillers at all. And at the same time training for a half marathon. Its not working very well. I was supposed to run today according to my traning plan but I could hardly make it out of bed becasue of the pain. I wont let this stop me but instead rest and try to restart tomorrow. I wont let this thing beat me. Im stronger than my EDS. Im thinking of putting something on my back about running with EDS for awareness. Its a rare disorder and in Sweden there are not even any doctors that specialises in it so I usually end up having to explain to doctors what it is and what it means. More people need to learn about this thing because as it is today it destroys people and families because there is nu cure and no treatment. Anyway I just needed to put my thoughs down to writing and hope that you get cheer me up a bit. I will make this race. I will run over that finish line and I will be super proud of what I made my body do. I know it. I jsut have to get through this bad day, get the pain out of my head and fight! Im working on our costumes right now to take my mind of the pain. Please send some positive thoughts my way. The ones Im thinking is that in 36 day I finally get to leave a very cold and snowy Sweden and go to USA and Disney world again! And stay at Dawnys amazing house and meet some of my best friends! See I already feel better.