Struggling towards the Disney princess half marathon

Discussion in 'Anything Goes' started by Snoffsan, Jan 16, 2018.

  1. Snoffsan

    Snoffsan Well-Known Member

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    As some of you know Im suffering from a connective tissue disorder called Ehlers-Danlos syndrom. Some day s its a hell. Today is one of those days and I need some positive reinforcments.

    Last year I ran the 10k at Disney marathon weekend. My meds was working really well back then and I felt like I could conquere the world and signed upp for the Disney princess fairytale challange 2018. That means that in just over a month from now I will be running a 10k and the day after a half marathon.

    I never ran longer than a 10k before and Im starting to get scared.

    Right now my meds is not working at all and because of that I was adviced to stop taking them. I was on a high dose of morphine every day to get through the pain. Right now Im trying to live without any painkillers at all. And at the same time training for a half marathon. Its not working very well.

    I was supposed to run today according to my traning plan but I could hardly make it out of bed becasue of the pain. :(

    I wont let this stop me but instead rest and try to restart tomorrow. I wont let this thing beat me. Im stronger than my EDS.

    Im thinking of putting something on my back about running with EDS for awareness. Its a rare disorder and in Sweden there are not even any doctors that specialises in it so I usually end up having to explain to doctors what it is and what it means. More people need to learn about this thing because as it is today it destroys people and families because there is nu cure and no treatment.

    Anyway I just needed to put my thoughs down to writing and hope that you get cheer me up a bit.

    I will make this race. I will run over that finish line and I will be super proud of what I made my body do. I know it. I jsut have to get through this bad day, get the pain out of my head and fight!

    Im working on our costumes right now to take my mind of the pain.

    Please send some positive thoughts my way.

    The ones Im thinking is that in 36 day I finally get to leave a very cold and snowy Sweden and go to USA and Disney world again! And stay at Dawnys amazing house and meet some of my best friends!

    See I already feel better. :)
     
  2. Shelterkat

    Shelterkat A Very Merry Unbirthday!

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    Sending pixie dust and "There"s a great big beautiful tomorrow' wish!
     
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  3. tiggeriffic

    tiggeriffic DPF Charter Member DPF Charter Member

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    Positive thoughts sent your way. Do what you can and please don't worry about what you can't. I hope all goes well and you have a wonderful time!
     
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  4. LittleBird

    LittleBird Well-Known Member

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    Rest and restart sounds like an excellent plan. Take it one day at a time and, before you know it, you'll be across that finish line!

    [​IMG]
     
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  5. Sami

    Sami Well-Known Member

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    You can do it Snoffsan! Just take it one day at a time, if you did it before you can do it again!

    I think it's a great idea to put Ehlers-Danlos syndrome (EDS) on the back of your shirt to bring awareness to the disorder, there are many types of illnesses that we don't know much about, but bringing up awareness brings us closer to treatments and cures.

    Sorry to hear today is a tough day for you, but your positivity and preservation keeps you strong, along with the support from your family and friends!

    You'll make it past those finish lines! And when you do, you will feel like this!!
    [​IMG]

    You're right, you're better than your EDS, and it doesn't define who you are or what you know you're capable of!!

    I'll be cheering for you from the virtual side lines!!! *cheer cheer cheer* *shakes pompoms*
    [​IMG]

    Sent from my SM-G935V using Tapatalk
     
    Last edited: Jan 16, 2018
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  6. Kiragigi

    Kiragigi Active Member

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    You got this, sister! And 99% of Disney runners are *not* athletes (myself included!). You have nothing to worry about . No one will notice. Stop and take lots of photos with characters and have a great time and be sure to wear that bling proudly— you earned it!


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  7. pincrazy

    pincrazy Active Member

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    Snoffsan, you are Brave, and Incredible(s)! You will Bolt over any finish line you attempt! If you ever doubt, think Inside Out, and you'll have the strength, courage, and heart of a Lion King(sorry Queen)! I hope this inspires you, and gives you the push you need each morning to not be a Sleeping Beauty, although if you need to rest by all means take the Minnie break. : )
     
  8. Snoffsan

    Snoffsan Well-Known Member

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    Awww love you all!!! Today everything feels a lot better and I have new energy buzzing around in my body and mine. Most of it because of your amazing posts here!

    I will keep you updated on the work of our costumes and my training and hopefully in about 40 days I will be able to cal myself a half marathon finisher!
     
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  9. Snoffsan

    Snoffsan Well-Known Member

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    We finally decided on costumes as well. My daughters will run the 5k as Aurora. One in blue and one in pink. The 10k I will be Anna and my husband will be Elsa. He did get to choose between Kristoff, Sven, Olaf and Hans as well but since it is a princess eace and they tell you to find your inner princess so he wanted to be Elsa :) And for the half we were thinking about Pocahontas but did not find anything matching for him to be so we decided on Snow white. For both of us LOL My hubby is funny. He will wear a tutu for both races but shorts under. I will make sparkly skirts for me because I dont want to run in a tutu.
    Working on the costumes as soon as I get a minute over between work, running, doctors appoinments for me and one daugther and resting. Fun but exhausting. 35 days until we leave!
     
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  10. timeerkat

    timeerkat Your Friend Who Likes To Play

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    You are amazing! A lot of people in perfect health don't go out for the races, so with your EDS, you kick even more booty! :)

    I say yes, totally put a note about EDS on your back. I know at least at the California races, a lot of people run for charities for conditions/diseases, so I would assume the WDW ones are the same.

    And those costumes sound amazing, and your hubby is awesome for going along with the theme! :D I look forward to seeing the photos!
     
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  11. xdattax

    xdattax Well-Known Member

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    If I see you on the course I’ll be happy to run or walk with you and encourage you!
     
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  12. Purplemandms

    Purplemandms Like the candy!

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    To echo everyone else's thoughts: we support you 100%!! As a confession, although I don't meet all the diagnosis criteria for EDS, I meet 4/5. I have severe hyper mobility on my ball and socket joints, and I actually was only able to train for a 5k when my hip no longer would support me in training. The inflammation and frequent dislocation is incredibly frustrating and at times really painful - so when I say that I'm really proud of you continuing and am inspired, it comes from a special place. I've been going through the physical therapy for the last 5 years, and hopefully will one day I can make a 10k or even a half marathon too :)


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  13. CCofRR13

    CCofRR13 Well-Known Member

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    Your husband chose Elsa?? Haha ~ good for him!

    I hope you keep feeling better and better. Best of luck and can't wait to see the photos.
     
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  14. Sami

    Sami Well-Known Member

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    Yes!! Take lots and lots of pictures, we would love too see all these great costumes!!

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  15. Snoffsan

    Snoffsan Well-Known Member

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    I really hope we meet up there! Would be great. Will you dress up?
     
  16. Snoffsan

    Snoffsan Well-Known Member

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    Sounds like you have EDS. You dont have meet all the criteria to get the diagnosis. You should take it up with a doctor. Not that they can do much but it is nice to have a name for all the problems and strange symtoms.
     
  17. Snoffsan

    Snoffsan Well-Known Member

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    LOL yeah he is a very special man! Love him to bits for it. :) I think he really just want the attention on the course and that he will get if he dresses up as a girl LOL!
     
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  18. xdattax

    xdattax Well-Known Member

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    Yup. 5k is Sally rag doll, 10k is pink aurora, the Half has yet to be decided.


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  19. mickeymousje

    mickeymousje Well-Known Member

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    You’re a amazing and strong women and it’s amazing that you are going to do this! We are all here to support you and get you over that finish line! I’m sure you can do this :D
     
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  20. Connies_Hobby

    Connies_Hobby SPREADING the DISNEY PIN MAGIC!!

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    I just finished reading your initial thread from Tuesday. I highly respect and admire you. Words escape me. Truly they do.

    All the responses...filled with so very much encouragement, support and love. I say "ditto" to all the comments above. You TRULY have virtual-cheerleaders on dpf.

    I look forward to reading about your adventure next month.

    Remember, (sorry guys) "I am woman, hear me ROAR!" - YOU-GO-GIRL!
     
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  21. Snoffsan

    Snoffsan Well-Known Member

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    Wow you are doing all 3 races?!?! That is amazing! I did the 5k and 10k last year but never ran a half so the challange is enough for me lol :)
     
  22. xdattax

    xdattax Well-Known Member

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    I’m not smart and am quite the glutton for punishment. These two things explain pretty much my existence and who I am as a person.

    But, as Johnny Cash said, if you’re gonna be dumb you gotta be tough.


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  23. dancecats

    dancecats Administrator Staff Member DPF Administrator

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    I have said this before and I'll say this again: you and your amazingly positive attitude and outlook never cease to be a source of amazement and inspiration for me. If anyone can get across that finish line (fashionably dressed, no less), it'll be you and your family. Plus, I would bet that you'll find your way onto RunDisney's website again, as an added bonus and nod to your sewing skills! ;)

    I have complete confidence that you've got this. Take the training one day at a time and just push through. I find when you look at something massive all at once, it seems overwhelming, but when you break it down into smaller pieces, it suddenly becomes manageable.

    Oh, and don't forget to plan for the enormous (decadent) treat for after the half marathon. You'll definitely have earned it! I wish I could be there in Florida, cheering you on. Just know that I'll be cheering you on from across the country - and expecting to see tons of photos!
     
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  24. caw caw rawr

    caw caw rawr Squirrel!

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    I just wanted to add my support and be one more of your cheerleaders. You've got this!
     
  25. xdattax

    xdattax Well-Known Member

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    Hope you’re on your way to WDW! We’re headed to the expo now, only 200+ miles to go!
     

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